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De-identification: Definition, types, relevance and operational approaches

Pseudonymisation is not anonymisation! In this seminar session, you will expand your knowledge of de-identification and its importance for protecting health-related personal data in human research. In addition to defining the term, we will distinguish between the different types and explore their relevance for planning human research projects. An overview of operational approaches for proper de-identification will also be provided.

About this session

This two-part session highlights the principles and relevance of de-identification of health-related personal data in human research and provides insights into the operational practices of proper de-identification.

Find out more about the whole seminar series here: Facts and pitfalls for observational studies - How to plan and conduct HRO projects.

Content and speakers:

Content:

De-identification in human research:

  • Term / definition
  • Types
  • Relevance for the planning of human research projects
  • Insights into operational approaches / practices

Speakers:

Dr. iur. Thomas Gruberski, Ethikkommission Nordwest- und Zentralschweiz (EKNZ) & Department Klinische Forschung (DKF) Basel (representing swissethics)

Matthias Joos, Data Solution Engineer, Department of Data and Platform Services, University Hospital Zurich (USZ)

Who should attend:

The main focus groups are researchers and study teams with planned, ongoing or completed HRO projects (observational studies), who have questions about de-identification.

When:

Wednesday, 25 June 2025, 12h00-13h00

Registration:

Register now for this session.

Course materials

Download the presentation, Q&A, and video from this session.

All materials reflect the status quo as of the time of the seminar.

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There is one more session planned for this year on Wednesday, 19 November 2025.

More details about the sessions will be provided soon.

Past sessions in this series